Something is taking over my body and mind... Bb..... !!

I wrote this letter to my husband on November 1994....  Little did I realise then that whatever I thought was 'trying to take over my body and mind' was in fact Borrelia burgdorferi !!:  (I found this letter a few weeks back whilst tidying out my cupboard!)

15th November 1994 ~ 7:15pm 
Dear C, If you find me unconscious please give this letter to Dr R and don’t let me be take to V Hospital or the J Hospital, maybe the G Clinic or such.   The med aid card is in my purse, in my Aztec bag in the cupboard & the cheque book + my ID. On the 14th I suffered very strange headaches, also visual anomalies. White lights flashing across my vision.  Today the headaches were very much less than yesterday. Yesterday they were like stabbing pains in my right temple forehead and also at the bottom of my head.  At the time of writing there is a band of pain at the back of my head.  My eye sight has been blurred and troublesome.  The eye itself does not feel as it belongs to me.  I have had a very unsteady day and the only medication that I have taken in the last two days are – New anti-biotic – Rulin. Clarityn which didn’t work,  one x phenagan, stopayne and valoid.  Today I have only taken 1 x Rulin , no stopayne, 1 x Hepavite, & yesterday.  ALSO taken for the pain in my hands and joints.  14th – 1 x Veltex and 15th 1 x Veltex. I am convinced that the Nivaquine and the Veltex are the reasons for the failure in my vision.I have experienced incredible ‘nightmares’, call them what you may.  My temperature has been normal for the last two days (previously 40degs).  Today my vision is very obscured and whenever I close my eyes, I experience sheets of white light and then colours of lines, patterns flowing along – very much like a kaleidoscope.  The nightmares have left me unnerved and I almost feel as if someone / thing is trying to take over my mind, but I do NOT believe this, just have this feeling of something else in control, not me.The other doctor (?) wanted to take some blood tests – something along the lines of whatever the rashes appears to resemble.  I am very concerned about this.   My head is throbbing.  I am going to make supper for J and S now. It is 7:45pm.  I do not believe this has taken me ½ hour to get this down in writing.I have told the children that I love them very much, but I haven’t told them about how I feel as I don’t want to scare them since they are on their own with me now.Love P. 

Getting Intimate with our Viruses

This is a really great blog I'd like to share with you from VLG on Valcyte.....
She provides a list of possible blood tests for viruses that could be causing your chronic fatigue.

The Vancouver Sun: Report on Lyme disease

People with Lyme disease say they can’t get treatment

Health officials say they don’t need it. It's a controversy with a bite.

BY ERIN ELLIS, VANCOUVER SUN AUGUST 16, 2010

“The doctors have a big apology to give the general public,” he says. “Infectious disease doctors don’t even believe that chronic Lyme disease exists. Their knowledge is way, way behind.”

Chronic fatigue - a symptom of Lyme Disease

For me it was the chronic fatigue that over took my body and made me unable to function in my daily life.
This link is interesting as it describes what you can do to overcome CFS.

British jouno contracts Lyme in South Africa during World Cup 2010

British journalist Jonathan Pearce contracted Lyme Disease whilst working in South Africa during the 2010 World Cup.  Will be be told it is 'all in his head' like many of us experience or will he be lucky enough to find a Lyme Literate medical doctor who will treat him properly before his life get 'stolen' like so many of us experience

The Psychological Effects of Lyme

Doctors warn that Lyme can cause changes of personality !
With all the symptoms that Lyme Disease sufferers have to put up with, I am not surprised

A Letter to Normal People

Have you ever wished you could explain to family and friends how you are feeling.
Do you get tired of being told  "Oh! You look good today" when inside you feel like you are in the throes of death !  This link is written by Anonymous as "A Letter to Normal People."

Share it with family and friends so that they can try to understand how you REALLY are feeling.

Lyme Disease - An exercise in nailing Jello to a wall

If your doctors thinks it is all in your head, it time to get a new doctor...

A Plague of Ignorance regarding the Ignorance of a Plague

A Plague of Ignorance regarding the Ignorance of a Plague

http://www.ra-infection-connection.com/Scott%20Taylor%202004%20CHRONIC%20LYME%20DISEASE.html

DISEASE (Borreliosis)

A Plague of Ignorance Regarding the Ignorance of a Plague

© Copyright 2004, Dr Scott Taylor, DVM,
All rights Reserved

My objective for writing this report is to help inform the layman and the medical community about the extremely complex infection called Lyme disease. I have recently been infected with Lyme disease and I will share my experience and what I have learned about the complex nature of Lyme disease in this report.

I continue to update this report and I foresee many revisions of it in the future as more information regarding Lyme disease surfaces. I have recently been introduced to a major medical breakthrough discovered by Dr. Trevor Marshall, research director at the Autoimmunity Research Foundation in Thousand Oaks, CA. I have updated this version of the report to include this vital information.

Lyme disease (LD) is a seriously complex multi-system inflammatory disease that is triggered by the bacterial lipoproteins (BLPs) produced by the spiral-shaped bacteria called Borrelia. Borrelia are difficult to isolate, grow, and study in the laboratory. So, our technical knowledge of this pathogen is poor compared to our understanding of most bacteria that cause disease. Transmission of Borrelia occurs primarily through the bite of ticks. The disease affects every tissue and every major organ system in the body. Clinically, it can appear as a chronic arthalgia (joint pain), fibromyalgia (fibrous connective tissue and muscle pain), chronic fatigue, immune dysfunction and as neurological disease. LD may even be fatal in severe cases.

The diagnosis of Lyme disease is primary based upon clinical evidence. There is currently no laboratory test that is definitive for Lyme disease. Many tests give false negative results. Physicians not familiar with the complex clinical presentation of Lyme disease frequently misdiagnose it as other disorders such as: Fibromyalgia or Chronic Fatigue Immune Dysfunction Syndrome (CFIDS), Multiple Sclerosis, Lupus, Parkinson’s, Alzheimer’s, Rheumatoid Arthritis, Motor Neuron Disease (ALS, Amyotrophic Lateral Sclerosis -Lou Gherig’s disease), Multiple Chemical Sensitivity Syndrome (MCS) and numerous other psychiatric disorders such as depression and anxiety.

Lyme disease is a familiar name to most people, but their knowledge of it is very limited. Unfortunately, this is also true for most professionals in the medical community. 

Insurance companies deny coverage for Lyme patients

In this compelling book on Lyme Disease read this excerpt on how Lyme sufferers are being discriminated against.  Click title for link.

Chronic Lyme Disease - Myth or Reality

This website was founded by several people whose wish it is to educate Lyme Disease sufferers from around the world.  Click title to link to their website.

Lyme Disease Symptoms

Early-Stage Lyme Disease Symptoms: Circular rash known as erythema migrans (EM) Fatigue Chills, Fever Headache Muscle Soreness Joint Aches Swollen Lymph Nodes Late-Stage (Chronic) Lyme Disease Symptoms: Severe Headaches, brain fog, and confusion Neck Stiffness Meningitis Encephalitis Neuropathy Dizziness Cardiac Irregularities, arrhythmia, and pain  Depression and seasonal affective disorder (SAD) Anxiety, panic attacks, and social withdrawal Memory Loss, poor concentration Schizophrenia, paranoia Obsessive-Compulsive Disorder (OCD) Bipolar Disorder, manic depression Chronic Fatigue Syndrome & Fibromyalgia Numbness and Tingling arthritis and arthritic symptoms

Lyme - The unknown epidemic

Millions of people who are diagnosed with MS, fibromyalgia, Alzheimers, chronic fatigue syndrome and other degenerative diseases could well have Lyme Disease causing or contributing to their illness/es.  Forget everything you may previously have read about Lyme.  It is not a rare disease at all. It is an epidemic.

For more on this topic, click the above title

"Lyme is not just a disease that makes you tired and itchy - 
it can utterly destroy a person's life and ultimately be fatal"  


"If it wasn't for AIDS, Lyme would be the number one infectious disease in the US and Western  Europe...."

You may find this book interesting reading...

Movie about Lyme disease

This movie has recently been released in the United States.  Watch the trailer.
It is a MUST see if you are a Lyme sufferer.

The South Africa Government and Insurance companies MUST change their attitude to Lyme Disease and recognise it for the debilitating disease that it is.

It is NOT in the mind!

Unless you have suffered with Lyme Disease, you can NEVER understand what it does to you.
How it tries to strangle you and and slowly suffocate you, stealing your life from you !!

Tick bites and mystery food Allergy

Do you eat beef, pork or lamb?  Then you should listen to this audio recording.

Lyme and Ozone (03) Therapy...

~7~ SEVEN LYME FACTS THAT COULD HAVE SAVED ME!!!

Lyme Disease is spreading around the world

Lyme Disease is spreading around the world and is alive and kicking in South Africa!

The disease is well documented in northern African countries of Tunisia, Morocco and Senegal, but little is known of its effects in southern Africa and more specifically South Africa.

Lyme Disease - a new disease in southern Africa..... 1989 !

In 1995, I suggested to my doctor that what I was suffering was Lyme Disease and was told it was impossible.  Lyme Disease only occurred in the town of Lyme, Connecticut, USA....
In 1989, it is suggested in this article that there was evidence of  lyme disease in the Republic of South Africa.

Why didn't they just listen to me instead of fobbing me off with MS ? !!

Home Remedies to help you cope with Lyme

Co-infection