We're Misunderstood

This blog is written by a young lady who was diagnosed with Lyme disease in January 2011.

As she says:  "Lyme disease is an epidemic larger than AIDS, West Nile Virus, and Bird Flu combined. The "great imitator", Lyme affects each person differently. Millions are silently suffering, improperly diagnosed with Fibromyalgia, Multiple Sclerosis, Parkinson's, Chronic Fatigue Syndrome, ALS, Alzheimer's, Psychiatric Disorders, and many others."

It is bad enough dealing with Chronic Lyme Disease and the many co-infections that go with it, but sometimes it is even harder trying to deal with the may sceptics and critics who pass comment when they are ignornant about the ravages of these illnesses.  It really is like having the sword of Damocleas hanging over you.


This blog is truely inspirational and the article "We're Misunderstood" could have been written by me, but after 30 years of battling this illness with no diagnosis, I don't think I could have stated it so well.

Chronic fatigue - a symptom of Lyme Disease

For me it was the chronic fatigue that over took my body and made me unable to function in my daily life.
This link is interesting as it describes what you can do to overcome CFS.

A Plague of Ignorance regarding the Ignorance of a Plague

A Plague of Ignorance regarding the Ignorance of a Plague

http://www.ra-infection-connection.com/Scott%20Taylor%202004%20CHRONIC%20LYME%20DISEASE.html

DISEASE (Borreliosis)

A Plague of Ignorance Regarding the Ignorance of a Plague

© Copyright 2004, Dr Scott Taylor, DVM,
All rights Reserved

My objective for writing this report is to help inform the layman and the medical community about the extremely complex infection called Lyme disease. I have recently been infected with Lyme disease and I will share my experience and what I have learned about the complex nature of Lyme disease in this report.

I continue to update this report and I foresee many revisions of it in the future as more information regarding Lyme disease surfaces. I have recently been introduced to a major medical breakthrough discovered by Dr. Trevor Marshall, research director at the Autoimmunity Research Foundation in Thousand Oaks, CA. I have updated this version of the report to include this vital information.

Lyme disease (LD) is a seriously complex multi-system inflammatory disease that is triggered by the bacterial lipoproteins (BLPs) produced by the spiral-shaped bacteria called Borrelia. Borrelia are difficult to isolate, grow, and study in the laboratory. So, our technical knowledge of this pathogen is poor compared to our understanding of most bacteria that cause disease. Transmission of Borrelia occurs primarily through the bite of ticks. The disease affects every tissue and every major organ system in the body. Clinically, it can appear as a chronic arthalgia (joint pain), fibromyalgia (fibrous connective tissue and muscle pain), chronic fatigue, immune dysfunction and as neurological disease. LD may even be fatal in severe cases.

The diagnosis of Lyme disease is primary based upon clinical evidence. There is currently no laboratory test that is definitive for Lyme disease. Many tests give false negative results. Physicians not familiar with the complex clinical presentation of Lyme disease frequently misdiagnose it as other disorders such as: Fibromyalgia or Chronic Fatigue Immune Dysfunction Syndrome (CFIDS), Multiple Sclerosis, Lupus, Parkinson’s, Alzheimer’s, Rheumatoid Arthritis, Motor Neuron Disease (ALS, Amyotrophic Lateral Sclerosis -Lou Gherig’s disease), Multiple Chemical Sensitivity Syndrome (MCS) and numerous other psychiatric disorders such as depression and anxiety.

Lyme disease is a familiar name to most people, but their knowledge of it is very limited. Unfortunately, this is also true for most professionals in the medical community. 

Lyme - The unknown epidemic

Millions of people who are diagnosed with MS, fibromyalgia, Alzheimers, chronic fatigue syndrome and other degenerative diseases could well have Lyme Disease causing or contributing to their illness/es.  Forget everything you may previously have read about Lyme.  It is not a rare disease at all. It is an epidemic.

For more on this topic, click the above title

"Lyme is not just a disease that makes you tired and itchy - 
it can utterly destroy a person's life and ultimately be fatal"  


"If it wasn't for AIDS, Lyme would be the number one infectious disease in the US and Western  Europe...."

You may find this book interesting reading...

Iodine and Lyme Disease...... Beyond anti-biotics

An interesting article on the possible benefits of Iodine on Lyme Disease.
Building the body's mineral reserves has been an essential part of some heavy metal detox programmes.

Lyme disease: A Look Beyond Antibiotics
Dietrich K.Klinghardt, MD, PhD
Bellevue WA aant@neuraltherapy.com 1/7/05 and 1/7/06
425-637-9339

"In the last decade the majority of outcome-oriented physicians observed a
major shift: we realized that it was neither the lack of vitamins or growth
hormone that made our patients ill. We discovered that toxicity and chronic
infections were most often at the core of the client’s suffering. We watched
the discussion, which infection may be the primary one: mycoplasma, stealth
viruses, HHV-6, trichomonas, Chlamydia pneumoniae, leptospirosis,
mutated strep, or what else?

The new kid on the block is Borrelia burgdorferi (Bb) and some of us have
looked at it for a long time as possibly being the bug that opens the door for
all the other infections to enter the system. Lyme disease has become a
buzzword in the alternative medical field. Since none of the recommended
treatments are specific to either one of the microbes, we can never assume
that we really know what we treated once a patient has recovered."


It appears that many patients with MS, ALS, Parkinson’s disease, autism,
joint arthritis, chronic fatigue, sarcoidosis and even cancer are infected with
Borrelia burgdorferi. But is the infection causing the illness or is it an
opportunistic infection simply occurring in people weakened by other
illnesses.

http://www.klinghardtacademy.com/images/stories/Lyme_Disease/Lyme_protocol_Jan06.pdf